Friday, December 21, 2012
This month I realized something. There are 2,000 units in two vials. Two boxes of insulin pens are 3,000 units.
Since my prescription was about to expire I wondered, what if I filled my insulin pump using pens instead of vials? That way I would have more insulin for the same co-pay.
Filling my pump cartridge from a pen was easier than using a vial. All I did was tug the plunger down twice like always. Instead of filling the cartridge with air afterwards, I simply stuck the needle in the insulin pen gasket. With no air in the cartridge, I dialed the insulin pen to 60 units and pushed the button. Insulin forced the plunger up as it filled the cartridge. I repeated this until I filled my cartridge. Best of all my cartridge didn't get as many bubbles.
Having plenty of insulin in the fridge is a comforting feeling. Especially today. Doomsday. Oh noes!
Wednesday, December 12, 2012
One hundred thousand people in a stadium, so many people they look like pixels. Odds are 8% of them have diabetes. .01% of them have MG. What are the odds that any of them have thymoma cancer?
Well, we need more stadiums.
One in 1.3 million, about 400 people a year in the USA, are diagnosed with a thymoma tumor. I was one of them in 1998. Seeing dark circles on my CT scan changed everything. I never felt so alone.
Now I am celebrating the holidays with my family for the 14th time since I was diagnosed. Fourteen times of wrapping gifts. Fourteen times unwrapping them together. Fourteen holiday meals. Life is a gift, one that I need to stop and marvel at sometimes.
The downsides of having cancer are so obvious they aren't worth mentioning. The upside? Only a handful of people in the world know the joy of surviving thymoma. I get to be one of them. Fourteen years cancer free. That is reason enough to smile today.
Posted by Marie Smith at 8:44 PM
Wednesday, December 5, 2012
Tuesday, December 4, 2012
In the USA over 25 million people live with diabetes. We could fill 250 100,000 seat stadiums. We make up 8% of the population. If 8% of the people in a stadium stood up and yelled, everyone would hear the roar. If their family and friends stood up, well, almost everyone would be on their feet.
In the USA about 36,000 people live with myasthenia gravis. That is .01% of the population. That works out to about 14 in a 100,000 people. If 14 people stood up in this stadium, would you see them? Would you hear them yell?
Take a long look at the stadium photo. Fourteen people in 100,000 know what MG feels like. Just looking at that picture makes me feel lonely. Rare things are often prized, but not when it is a rare disease. Loneliness is a difficult challenge, but it isn't insurmountable. We live in the internet age and the internet is magical.
In bigger cities there are support groups for people with MG. Only, not everyone lives near a support group, and not everyone thrives in a group. Like me. My name is Marie and I am an introvert. I like people a great deal... in small, infrequent, doses. Support on the internet works best for me. The diabetes support I have received online has been a source of strength and joy in my life. I hope to see the same thing available to anyone who has MG and feels lonely. MG is hard and frustrating. I know what it feels like. Other people do, too.
I blog about MG. Are there other bloggers out there? If you blog about MG please let me know. Do you tweet about MG? If so, please join us. The small group of people I found on Twitter who live with MG:
These MG warriors know what you are going through. MG feels lonely, but you're not alone. That list is proof of it. In an imaginary stadium of 100,000 people let's get seats together. We might be a small section, but we can be strong together nonetheless.